What does ICGG mean in INTERNATIONAL
ICGG stands for International Collaborative Gaucher Group. It is an international, non-profit organisation, created in 1996 with the aim of providing access to medical care and research on Gaucher disease (GD). This rare genetic disorder affects individuals from all over the world, and ICGG's mission is to create a collaborative network of experts to provide accurate diagnosis and treatment for GD. In addition, ICGG provides training and education resources as well as support for families affected by Gaucher disease.
ICGG meaning in International in International
ICGG mostly used in an acronym International in Category International that means International Collaborative Gaucher Group
Shorthand: ICGG,
Full Form: International Collaborative Gaucher Group
For more information of "International Collaborative Gaucher Group", see the section below.
What is International Collaborative Gaucher Group
The International Collaborative Gaucher Group (ICGG) was established in 1996 with the goal of providing a unified response to the challenge of diagnosing and treating patients with Gaucher disease. The organization represents a collaboration between medical professionals, pharmaceutical companies, patient networks, health organisations, funding bodies, research institutions and government entities. ICGG’s primary objectives are to increase awareness of GD worldwide; identify optimal treatments; design clinical strategies; and promote further understanding of epidemiology and pathophysiology of this rare genetic disorder. To this end, ICGG works closely with relevant stakeholders in the medical field to develop consensus guidelines for diagnosis and monitoring as well as develop educational resources for families affected by GD.
ICGG’s Activities
The activities undertaken by ICGG include but are not limited to organizing international symposia; creating online platforms such as the e-Learning portal (gaucherpedia) which provides free access to learning materials related to GD; publishing profession papers on GD; developing online databases where information about individual patients can be collected securely; conducting research studies; promoting public health initiatives such as screening programmes in underserved communities; carrying out advocacy campaigns aimed at increasing awareness about this rare disease; running patient support programs which offer emotional counselling services and psychosocial support among others.
Essential Questions and Answers on International Collaborative Gaucher Group in "INTERNATIONAL»INTERNATIONAL"
Through its dedicated efforts, ICGG has made great strides in bringing together global stakeholders from various fields who are committed towards fighting Gaucher Disease together. Its contributions have had significant impact on improving detection rates among high risk populations as well as enhancing access to better treatment options globally. By establishing formal collaborations with pharmaceutical companies and other organizations dedicated towards advancing research into rare diseases like GD, the organization offers invaluable support towards finding better therapies for individuals living with this degenerative disorder that affects multiple organs systems.