What does PCHA mean in PEDIATRIC

The Pediatric Congenital Heart Association’s mission is to empower and connect all families impacted by congenital heart defects through providing support, raising awareness, advocating for our families, educating the medical community and advancing lifesaving research.

A congenital heart defect (CHD) is a problem with the structures of the heart present at birth. CHDs are caused by abnormal development of the fetal heart before birth that affects how well it pumps blood to carry oxygen to your body.

Congenital heart defects are among the most common types of birth defects, affecting nearly one percent of births in the United States each year.

Any child can be born with a CHD regardless of race, sex or ethnicity.

The exact cause of most CHDs remains unknown. However, some conditions such as genetic disorders and infections during pregnancy may increase an infant's chances of having a CHD.

Some signs and symptoms include fatigue, shortness of breath when active, bluish tint on skin due to lack of oxygenated blood, fluid buildup in abdomen or feet and irregular heartbeat/palpitations.

Yes! Treatment options vary depending on the specific type and severity of CHD. Treatment may include medication to control arrhythmia or reduce fluid buildup; surgery to repair or replace certain structures; implantable devices that help maintain normal rhythms or correct structural problems; and other interventions such as lifestyle changes and physical therapy.

There is no known way to prevent CHDs from developing in pregnancy. To reduce risk factors associated with CHDs such as genetic syndromes or certain infections during pregnancy, pregnant women should follow their healthcare provider’s advice including taking prescribed medications as directed and avoiding alcohol consumption while pregnant or trying to conceive.