What does ORD mean in DISEASES

The Office of Rare Diseases is a branch of the US National Institutes of Health (NIH) established with the purpose of providing support for research into rare conditions and diseases. It provides information on rare diseases and treatments, facilitates the sharing of resources between organizations researching rare diseases, and works to reduce health disparities associated with affected individuals.

A rare disease, as defined by the US National Institutes of Health, is one that affects fewer than 200,000 people in the United States. The exact number may vary slightly depending on other criteria such as prevalence or number affected within certain age groups.

The ORD offers resources for researchers looking into rare diseases, including grant opportunities, an online database with data and literature related to rare conditions, technical assistance to promote collaboration between organizations working on such research, and access to experts in special fields relevant to their studies.

According to estimates from the National Institutes of Health (NIH), approximately 25-30 million Americans are affected by a rare disease. This accounts for up to 8% of the population.

Many research initiatives from both public and private entities have led to increased advancements in developing treatments for individual disorders which may provide relief from some symptoms or progression of illness associated with certain rare conditions. However due to limited funding and resources dedicated these areas much work still needs doing before effective cures can be found in many cases.

The Office of Rare Diseases provides educational materials concerning specific illnesses as well as general information about living with a chronic condition. It also maintains an online registry where patients can add their contact details if they wish so that researchers may try an enlist them for clinical trials or studies related to their condition. Additionally they provide links to external support networks setup specifically for those afflicted.

Funding comes from various sources including foundations, government agencies such as NIH and individual donations made by philanthropists interested in advancing knowledge about particular illnesses.

There are a variety ways you can participate in ORD activities depending on what area you are interested in contributing towards. You could become involved through volunteer opportunities available within local level or assist towards fundraising campaigns aiming at raising awareness about particular illnesses received through donations from individual contributors.

Yes! In conjunction with partners across medical institutions as well as patient advocacy groups ORD has organized several outreach initiatives targeted toward strengthening ties between communities affected by genetic/rare disorders within rural/underserved areas throughout America.

Yes! Organizations looking into conducting research related to genetic/rare disorders may apply for grants provided through this office which funds promising projects aimed at developing treatments/cures for particular conditions.