What does NORD mean in COMMUNITY
NORD, short for the National Organization for Rare Disorders, is a nonprofit organization established in 1983 to provide a voice for rare diseases and those affected by them. NORD works to connect patients, families and medical professionals with the most up-to-date information on rare disorders and the treatments available. It also lobbies on behalf of rare disorder stakeholders at both state and national levels to ensure their voices are heard. NORD also produces educational materials to help communicate about rare diseases and treatments options so that individuals can make informed decisions about their health care. With more than 250 member organizations, NORD stands as a unifying force amplifying the impact of its members’ efforts in advocating for patients.
NORD meaning in Community in Community
NORD mostly used in an acronym Community in Category Community that means National Organization for Rare Disorders
Shorthand: NORD,
Full Form: National Organization for Rare Disorders
For more information of "National Organization for Rare Disorders", see the section below.
What NORD Means
NORD stands for the National Organization for Rare Disorders, a patient support organization established in 1983 that works hard to advocate on behalf of patients with rare diseases. The organization provides resources such as an expansive database containing information about what causes these conditions and potential treatments. Additionally, NORD works diligently at both state and federal levels to ensure that policies are aligned with the interests of individuals living with rare conditions. Through its work, NORD aims to reduce barriers for access to treatment while also working toward finding cures for these conditions.
Essential Questions and Answers on National Organization for Rare Disorders in "COMMUNITY»COMMUNITY"
What is NORD?
National Organization for Rare Disorders (NORD) is a non-profit organization representing more than 6,000 rare diseases and disorders. As the leading voice of the rare disease community, NORD provides advocacy support to those affected by rare diseases and educates medical professionals about how best to diagnose and treat rare conditions.
What does NORD do?
NORD works to improve the lives of people living with rare diseases by connecting them to resources such as diagnosis and treatment options, educational materials, financial aid programs, and policy initiatives. NORD also advocates on behalf of the community in Washington DC; tracks research progress; contributes to advancing treatments; and publishes up-to-date information on the latest clinical trials.
Who is eligible for membership?
Membership is open to individuals with a diagnosed rare disorder or their families. Organizations whose mission is related to rare disease may also join. NORD’s member services are available in all 50 states, including free one-on-one consultations with experts in the field.
How can I access information from NORD?
The Rare Disease Database contains detailed information about over 6,000 diseases written for patients, caregivers and healthcare professionals including current published clinical trials and medically reviewed articles written at a level appropriate for most readers. You can also find general information about research updates on the website or through social media outlets like Facebook, Twitter, YouTube & Google+.
Are there other helpful resources provided by NORD?
Yes! The Patient Assistance Program helps qualifying individuals who have difficulty affording medications needed to treat their conditions. Additionally, Public Policy Initiatives inform policy makers about issues related to healthcare coverage, funding for research initiatives, and reform efforts that will impact people with rare disorders.
Is my donation to NORD tax deductible?
Yes! Donations made directly to National Organization for Rare Disorders are tax deductible as allowed by law – please consult your tax advisor if you need more detailed advice regarding your individual situation. Your contribution allows us continue our works of advocating on behalf of individuals affected by rare diseases throughout the United States.
Does my donation go solely towards researching treatments for rare diseases?
Your donations help us in many ways! In addition to research funding initiatives – your gift supports important programs such as patient assistance services; public policy development; medical education classes; social networking events & conferences; publication production & dissemination of information resources.
What is a ‘rare disease’?
A ‘rare disease’ is any condition that affects fewer than 200,000 Americans at any given time according to the FDA definition - this includes both genetic (inherited) disorders as well as acquired conditions caused by infections or environmental factors.
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