What does FRBC mean in CANCER
Family Registry for Breast Cancer (FRBC) is a free online registry that was created to promote widespread genetic testing for people at risk of inherited breast cancer. FRBC is a tool designed to help family members of those with a personal or family history of breast cancer to understand their increased risk for the disease, research their cancer risks and make informed decisions about preventive measures. The registry also provides support, resources and understanding to those affected by hereditary breast cancer.
FRBC meaning in Cancer in Medical
FRBC mostly used in an acronym Cancer in Category Medical that means Family Registry for Breast Cancer
Shorthand: FRBC,
Full Form: Family Registry for Breast Cancer
For more information of "Family Registry for Breast Cancer", see the section below.
Benefits Of Using FRBC
Using Family Registry for Breast Cancer (FRBC) can significantly improve an individual's chances of avoiding or detecting hereditary forms of the disease early on. With access to resources from experts in the field, those with familial ties to potential inherited breast cancers can become educated on each step involved with uncovering one's own risk assessment and should it be necessary, participate in proactive preventative measures such as regular screenings or doctor consultations. In addition, being part of the online community offered by FRBC enables individuals impacted by this type of cancer connect with peers through peer-to-peer conversations which can be invaluable during difficult times dealing with a diagnosis or when conducting research regarding treatment options available.
Essential Questions and Answers on Family Registry for Breast Cancer in "MEDICAL»CANCER"
What is Family Registry for Breast Cancer?
Family Registry for Breast Cancer (FRBC) is a comprehensive online resource that provides a centralized platform for collecting information on family histories of cancer. It allows individuals and families to share their medical histories with health professionals in order to receive personalized care and preventative measures.
How does the FRBC work?
The FRBC collects data from participants through multiple methods, such as an online questionnaire or survey tool, interviews with family members, and biological samples (e.g., saliva). This data can be used by healthcare professionals to identify potential risk factors or markers for certain types of cancer in a person’s family history.
Who is eligible to participate in the FRBC?
Anyone who has a personal experience or interest in breast cancer risks due to family history is eligible to participate in the FRBC. Participation involves consenting to providing personal contact information, sharing medical records, and/or providing biological samples.
What kind of information will be collected by the FRBC?
Through surveys, interviews with family members, and biological sample collection, the FRBC will collect various types of data relating to an individual's medical history as well as their relatives' physical characteristics and health conditions. This includes lifestyle habits such as smoking status and alcohol consumption; environmental exposures; reproductive history; any relevant diagnostic tests or treatments; and other health-related information that may provide insight into genetic susceptibilities or gene mutations linked to certain cancers.
What are some benefits of participating in the FRBC?
Participating in the FRBC gives individuals access to their own personalized cancer risk profile which can help them better understand their level of risk for developing certain cancers due to genetic predisposition. Through this platform, individuals can also connect with others who have similar experiences related to breast cancer risks due to family history, which can provide support throughout treatment processes. Additionally, research conducted through the registry will help further scientific understanding about specific genetic mutations associated with increased risks of certain cancers.
How will my data be protected within the registry?
All information collected through the FRBC is securely stored within a encrypted database system that complies with all state and federal regulations regarding patient privacy and security protocols. Participants’ data will only be shared internally among researchers who are conducting studies related to breast cancer risk assessment or prevention that has been approved by independent review boards. Data sharing outside of these approved research studies requires explicit permission from participants before release.
Do I need special software or hardware to participate in this registry?
No special software or hardware is needed for participation in the FRBC – you simply need access to an internet connection from your device of choice (desktop computer, laptop/notebook computer, tablet device). Once enrolled into the registry you can complete surveys online at anytime convenient for you from any location you choose.
Who will have access to my personal health information submitted through this registry?
All personal health information collected through this registry is confidential and private - only registered researchers affiliated with required approval from institutional review boards will have access your health information once it has been securely uploaded into our dedicated database system.
What happens after my survey/interview has been completed?
After completion of surveys/interviews your data will be securely compiled onto our database system and cross-referenced against other surveyed participants responses when needed for research purposes approved by board reviews.
If I decide not to participate how do I remove my name from this registry?
You can always opt-out without penalty at any time during your enrollment period simply by contacting us using our provided email address listed on our website via ‘contact us’ link.
How long does it take for results or findings generated through my participation become available?
Results obtained vary depending on projects being conducted; however usually within 6 months after completion research findings should become available via published reports onto key science journals such publishing Nature Genetics Journal.
Final Words:
Family Registry For Breast Cancer (FRBC) is an important online registry dedicated towards helping people at high-risk for hereditary forms of breast cancers assess their risks before any signs or symptoms develop. It offers vital educational materials related specifically towards learning more about preventive measures that can be implemented before any symptoms arise along with providing a supportive virtual platform where individuals impacted can interact within a supportive network concerning potentially life-altering diagnoses that may come from this form of inheritance predisposition towards developing certain types of cancers. Through widespread genetic testing facilitated through using this tool many lives could potentially be saved while fostering wider education around inherited risky factors associated generally with all types forms cancer.
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