What does CFBR mean in UNCLASSIFIED
CFBR (Cystic Fibrosis Biospecimen Registry), established in 2015, is a national resource for collecting, processing, and distributing biospecimens from individuals with cystic fibrosis (CF). It is supported by the National Institutes of Health (NIH) and the Cystic Fibrosis Foundation (CFF).
CFBR meaning in Unclassified in Miscellaneous
CFBR mostly used in an acronym Unclassified in Category Miscellaneous that means Cystic Fibrosis Biospecimen Registry
Shorthand: CFBR,
Full Form: Cystic Fibrosis Biospecimen Registry
For more information of "Cystic Fibrosis Biospecimen Registry", see the section below.
Mission
The mission of the CFBR is to:
- Collect and store high-quality biospecimens from individuals with CF and healthy controls
- Distribute biospecimens to researchers studying CF
- Support research on the causes, prevention, and treatment of CF
Services
The CFBR provides the following services:
- Biospecimen Collection: Collects biospecimens from individuals with CF and healthy controls, including blood, saliva, nasal swabs, and stool samples.
- Biospecimen Processing: Processes biospecimens to prepare them for research, including DNA extraction, RNA extraction, and cell isolation.
- Biospecimen Distribution: Distributes biospecimens to researchers studying CF, upon request and approval.
- Data Management: Maintains a database of biospecimen information, including clinical data and research findings.
Benefits
The benefits of the CFBR include:
- Access to High-Quality Biospecimens: Provides researchers with access to well-characterized biospecimens from a large cohort of individuals with CF.
- Support for CF Research: Facilitates research on the causes, prevention, and treatment of CF.
- Collaboration and Sharing: Encourages collaboration among researchers and sharing of data and biospecimens.
- Advancements in CF Care: Contributes to the development of new therapies and treatments for CF.
Essential Questions and Answers on Cystic Fibrosis Biospecimen Registry in "MISCELLANEOUS»UNFILED"
What is the CFBR?
The CFBR is a national registry that collects and stores biological samples and clinical data from individuals with cystic fibrosis (CF). The registry's goal is to advance research on CF and to improve the lives of individuals with the condition.
Who is eligible to participate in the CFBR?
Individuals with CF of all ages are eligible to participate. Parents or guardians of children with CF can also enroll their children in the registry.
What types of samples are collected for the CFBR?
The CFBR collects a variety of biological samples, including blood, saliva, sputum, and stool. The registry also collects clinical data, such as medical history, treatment information, and lung function test results.
How are the samples and data used?
The samples and data collected by the CFBR are used for research purposes. Researchers use the samples to study the genetic, biochemical, and immunological aspects of CF. The data is used to track the progression of CF over time and to evaluate the effectiveness of new treatments.
Is participation in the CFBR voluntary?
Yes, participation in the CFBR is voluntary. Individuals and families can choose to participate or withdraw from the registry at any time.
How do I enroll in the CFBR?
To enroll in the CFBR, contact the registry coordinator at your local CF center. The coordinator will provide you with more information about the registry and will help you complete the enrollment process.
What are the benefits of participating in the CFBR?
By participating in the CFBR, individuals and families can contribute to research that may lead to new treatments and a better understanding of CF. They may also have access to the latest information about CF research and clinical trials.
Final Words: The CFBR is a valuable resource for researchers studying CF. It provides access to high-quality biospecimens, supports research, and facilitates collaboration. The CFBR is committed to advancing research on CF and improving the lives of individuals affected by this disease.
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