What does IWSA mean in SYNDROMES
WAGR syndrome is a rare genetic disorder characterized by:
IWSA meaning in Syndromes in Medical
IWSA mostly used in an acronym Syndromes in Category Medical that means International WAGR Syndrome Association
Shorthand: IWSA,
Full Form: International WAGR Syndrome Association
For more information of "International WAGR Syndrome Association", see the section below.
What is WAGR Syndrome?
- Wilms' tumor (a type of kidney cancer)
- Aniridia (absence or underdeveloped irises)
- Genitourinary anomalies
- Growth retardation
Mission of IWSA
The mission of IWSA is to:
- Empower individuals and families affected by WAGR syndrome with knowledge and resources.
- Advocate for research and support services on behalf of the WAGR community.
- Connect members and provide a sense of community through events and online forums.
Services of IWSA
IWSA offers a range of services, including:
- Support groups: Provides emotional support and resources for families.
- Educational materials: Disseminates information about WAGR syndrome and its management.
- Financial assistance: Offers financial aid to families facing medical expenses related to WAGR.
- Research grants: Supports research into WAGR syndrome and its treatment.
- Advocacy: Advocates for policies that improve the lives of individuals with WAGR.
Essential Questions and Answers on International WAGR Syndrome Association in "MEDICAL»SYNDROMES"
What is WAGR Syndrome?
WAGR Syndrome is a rare genetic disorder caused by a deletion of part of chromosome 11. It affects multiple organ systems, including the eyes, kidneys, and reproductive system.
What are the common symptoms of WAGR Syndrome?
Common symptoms include Wilms' tumor (a type of kidney cancer), aniridia (absence or malformation of the iris), genitourinary abnormalities, and growth retardation.
What causes WAGR Syndrome?
WAGR Syndrome is caused by a deletion of a specific region on chromosome 11, known as the 11p13 region. This deletion can occur randomly or be inherited from a parent who carries the deleted chromosome.
How is WAGR Syndrome diagnosed?
WAGR Syndrome is diagnosed through a combination of physical examination, family history, and genetic testing. A genetic test, such as a chromosomal microarray, can identify the presence of the characteristic deletion on chromosome 11.
Is there a cure for WAGR Syndrome?
Currently, there is no cure for WAGR Syndrome. Treatment focuses on managing the symptoms and complications associated with the disorder, such as regular cancer screenings, vision therapy, and hormone replacement therapy.
What is the prognosis for individuals with WAGR Syndrome?
The prognosis for individuals with WAGR Syndrome varies depending on the severity of their symptoms. With early diagnosis and proper treatment, many individuals with WAGR Syndrome can live full and active lives.
How can I get support for WAGR Syndrome?
The International WAGR Syndrome Association (IWSA) provides support, information, and resources to individuals with WAGR Syndrome and their families. IWSA offers online forums, support groups, and educational materials to help individuals cope with the challenges of the disorder.
Final Words: IWSA is an invaluable resource for individuals and families affected by WAGR syndrome. Through its comprehensive services and unwavering support, the organization strives to empower and improve the quality of life for those living with this rare condition.
IWSA also stands for: |
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| All stands for IWSA |